Kolkata : Millions globally and ~2 lakh people in
India live with a life-limiting neurological condition called Multiple
Sclerosis (MS). The disease affects their central nervous system, depriving
them of their ability to perform simple everyday tasks like walking, cooking,
bathing or the strength to hold a child. Their day-to-day struggle remains
hidden and performing everyday tasks can feel like scaling an invisible
mountain.
One
can’t see and feel the burden MS patients carry. To bring a spotlight on MS,
Roche Pharma India, in collaboration with the Multiple Sclerosis Society of
India (MSSI) presents Walk In My Shoes - a public health awareness initiative
to highlight the often invisible struggles of individuals living with this
life-limiting neurological condition.
Visit
the #WalkInMyShoes simulation zone installed at Select City Walk Mall (H&M
Wing, Ground floor), Saket, New Delhi, from 22 to 24 August to experience what
it means to live with MS. One can also visit the simulation zone in Bangalore
at Brookfield Ecospace Park, Bellandur (Near 1C), from 20 to 22 August and at
Mumbai Phoenix MarketCity, Kurla (Atrium 5, LG Floor), from 22 to 24 August.
These simulation zones offer visitors ‘education through experience’ by
re-creating a sensory experience of four of the most commonly occurring MS
symptoms - loss of balance, motor impairment, blurry vision and loss of
sensitivity, while bringing to the forefront the everyday hardships faced by MS
patients.
You
can also lend your voice by sharing your support to their invisible struggles
using #WalkInMyShoes Each post, tweet or reel helps shatter the silence around
MS and ensure no one living with MS ever feels unseen. In addition to the
sensory simulation kiosks, www.walkinmyshoes.in
- a knowledge hub for authentic, credible and medically verified information on
MS is also launched. www.walkinmyshoes.in
aims to become a trusted digital platform, playing a crucial role in elevating
public literacy about MS, while empowering individuals to understand and act
upon evidence based health information.
“At
Roche, our mission goes far beyond medicines. We are deeply committed to
reimagining how chronic and life-altering conditions like Multiple Sclerosis
are perceived, diagnosed, and managed,” said
Rajji Mehdwan, Managing Director & CEO - India & Neighbouring Markets,
Roche Pharma. “With #WalkInMyShoes, we are not just raising awareness, we
are igniting empathy, amplifying patient voices, and driving meaningful change
across the healthcare ecosystem. By partnering with MSSI, we are uniting
science with compassion to break the silence around MS, champion timely
intervention, and push for an inclusive, patient-centric approach where no
individual living with MS is left behind. This is not just a campaign—it’s a
clarion call to action.”
MS
often strikes between the ages of 20 and 40, a time when individuals are
building careers, pursuing passions, and starting families. It is the leading
cause of non-traumatic disability among young adults and, if untreated, can
progress to severe and life-limiting disability. Women, who are two to three
times more likely than men to develop MS, face additional worries: how the
disease will impact their ability to conceive, carry a pregnancy, and care for
a child.
Bipasha Gupta, Chairperson
MSSI - Delhi, stated,
“Multiple Sclerosis is a complex neurological condition of young individuals
and is considered a progressive disease, as symptoms tend to worsen over time
causing disability. Early treatment is a must which can slow down disease progression and reduce
the risk of irreversible disability. People living with MS in India face a
multitude of challenges. From public awareness, absence of fair and
comprehensive insurance coverage, to hurdles in accessing disability benefits
due to lack of clear guidelines. Only a fraction of insurance plans cover
chronic conditions like MS, leaving patients to bear overwhelming out-of-pocket
expenses and navigate a system that fails to meet their needs. Public awareness
initiatives like #WalkInMyShoes are imperative in raising voices, creating
awareness, elevating societal understanding and advocating for change to
deliver equitable care.”
"The MS care landscape
in India is fragmented," stated Dr. Anshu Rohatgi, Vice Chairperson -
Neurology at Sir Ganga Ram Hospital.
“Multiple Sclerosis remains a misunderstood condition. Symptom variability and
non-specific presentation often lead to delayed or incorrect diagnosis. Timely
and accurate diagnosis is critical, as initiating the right treatment early can
significantly delay or prevent long-term disability. Campaigns like
#WalkInMyShoes help drive meaningful conversations and bring spotlight on these
issues. The primary goal in MS treatment is to reduce disease activity, thereby
slowing the pace of disability progression. As clinicians, we have a pressing
responsibility of early and accurate diagnosis and achieving the best treatment
outcomes for our MS patients. High-Efficacy Therapies (HETs) are crucial,
particularly for active or rapidly progressing cases, as they can significantly
slow disease progression and prevent irreversible neurological damage; helping
patients live independent, dignified lives,” he added.
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